Boy Born With A Rare Skin Condition Shows Incredible Determinatio
Meet the bravest Jonathan Pitre, a fourteen old guy who is an avid hockey fan, who suffers from Epidermolysis Bullos. People who are suffering this condition are called Butterfly children because their skins is as fragile as butterfly’s wings. It is one of the most rare and painful genetic conditions known to modern medicine.
Although they have a fragile skin, their heart is the exact opposite. They have a heart of warriors and they are stronger than they appear… which is proven by his amazing works.
Watch his full story below.
He is such an inspiration. Despite the crippling pain he faces every single day, he is determined to keep on living.
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